Jonah is on the cover of the thank you card for the Big Slick celebrity fundraiser for Children’s Mercy! All the celebs like Eric Stonestreet and Paul Rudd will get this. Oh man, this made Aaron and I so happy. Jonah has had a really stable past few days and nights. No big problems at all. It’s been our first run of good days in several weeks. His tummy still has that huge clot of blood in it pushing on his organs, but with time the body will take care of it. His lungs showed improvement yesterday too. His ecmo doctor assured us none of this is insurmountable! Pray his body heals, that it can handle the clot (we don’t need liver problems again), that our good days keep getting better. Thank you from the bottom of our hearts! We know all the support from #TeamJonah Is working! #makeJonahglow
Annie Noll
June 8, 2015
Jonah had a pretty good night and is having a good day. The question is: can his organs like the kidneys sustain all the pressure from his tummy? His tummy is full of clotted blood because bleeding is common on this machine from the blood thinners that they can’t drain out. So far, they are doing well. Jonah is not a candidate for surgery because of the thinners but they would do it of need be. Aaron and I dont want this! So to get a head of him, we have started waking up his lungs in hopes they can prove he can be weened off ecmo and we can get the goopy stuff out of his tummy. Please pray for Jonah’s organs to stay strong under the pressure of his tummy. That his lungs get better and better. That the docs make smart decisions. That our better days are closer rather than far away. Click like or comment yes! #makeJonahglow
June 4, 2015
#TBT- that time I brought Jonah to work and he destroyed the office when everyone was in a meeting. 🙂 Jonah had a great night and day. He had lots of healing rest. ( at least in my mind) We learned that the lungs are slow to heal and Jonah could be on ecmo for a month. That’s okay. Home is where we are together. Question- what show should we absolutely watch to pass time? And don’t forget, #makeJonahglow
